ASXL Community Celebration

A celebration for the ASXL syndrome community

Residence Inn Baltimore at Johns Hopkins Medical Campus
Overlook room (combination indoor/outdoor space)

Friday, July 19
Reception: 5:00-6:00pm
Dinner: 6:00-7:30pm
This event will not be livestreamed

Kick off the ASXL Family Conference at this all-community dinner that welcomes the medical and scientific community and families to enjoy an evening together while benefitting the work of the ARRE Foundation. The fun includes a welcome reception, dinner, activities, dancing, and recognition of the 2024 ARRE Foundation Honorees.

Dress code: We’ll be celebrating the super heroes of the ASXL community! Super hero costumes, capes, and other super gear is welcome.

Tickets

Tickets include buffet dinner, dessert, and one drink ticket (alcoholic or non-alcoholic beverage). A cash bar will be available.

Adults: $25 per person
Children: $10 per person
Non-oral feeding attendees: complimentary

2024 ARRE Foundation Honorees

Joanna Bailey

Chair’s Award
Given to an individual who has made extraordinary contributions to the ARRE Foundation and the ASXL community as a volunteer
Natasha Ludwig, PhD

Research Advocate Award
Given to a research or medical professional who has been a strong advocate for the patient and family community and has championed research progress for the ASXL community
Joey Zuijdervelt, MSc

Young Investigator Award
Given to an individual who is early in their research career and who has contributed to the body of knowledge about ASXL genes and syndromes