2026 ASXL Research Symposium program

Thursday, June 25 - Friday, June 26, 2026
Sheraton Ann Arbor
Ann Arbor, Michigan, U.S.A.
Venue information

The annual ASXL Research Symposium brings together innovative scientists, clinicians and industry leaders from around the world to drive ASXL research forward. This highly collaborative and interactive meeting establishes the critical foundation upon which therapeutic treatments and standards of care will be developed for ASXL-related disorders. By fostering new collaborations and facilitating the sharing of data, knowledge, reagents, and resources, this meeting unites our scientific community and accelerates our efforts to improve the quality of life of everyone living with an ASXL-related disorder.

This portion of the meeting is for scientists, doctors, and research professionals. ASXL Family Conference programming begins the evening of Friday, June 26.

Schedule at a glance

Tentative and subject to change; full program details forthcoming

Thursday, June 25
8:30am-6:30pm

  • Molecular mechanisms

  • Developmental models

  • Poster session and reception

Friday, June 26
8:15am-5pm

Confirmed speakers

The full program is still in development. The following speakers have been confirmed for the following sessions:

Molecular mechanisms

  • Beat Fierz, École polytechnique fédérale de Lausanne

  • Tatiana Kutateladze, University of Colorado

  • Emma Doyle, University College Dublin

  • Lluis Morey, University of Miami

  • Michiel Vermeulen, Radboud University

Developmental models

  • Val Arboleda, University of California, Los Angeles

  • Stephanie Bielas, University of Michigan

  • Rob Illingworth, University of Edinburgh

  • Shigeki Iwase, University of Michigan

  • Sally Camper, University of Michigan

Translational science

  • Stuart Cobb, University of Edinburgh

  • Sarah Pierce, Harvard University

Clinical research

  • Rujuta Wilson, University of California, Los Angeles

  • Jacqueline Harris, Johns Hopkins University

  • Jacqueline Kaufman, University of Michigan

Attendee testimonials

“[This is a] small meeting interactions with clinicians and scientists. The size and focus of the meeting makes interactions very easy and productive. There is an energy to the ARRE Foundation meetings that makes them very engaging. I have attended two and developed collaborations from both.”

“Both meetings I have attended have improved my technical knowledge of ASXL and PR-DUB, but also hearing from and meeting ASXL family members is very inspiring and provides huge motivation to focus research more directly on ASXL syndrome research and adjacent research questions.”

“[The ASXL Research Symposium] expanded my understanding and helped me identify ways to modify my current [clinical] practices.”

Past ASXL Research Symposia

Not just a scientific meeting

You can contribute to improving the lives of hundreds of families living with ASXL-related disorders by attending the ASXL Research Symposium. There are so many unanswered questions — and we need your help to answer them.

ASXL Research Symposium Program Committee

  • A young woman with shoulder-length dark hair, smiling and wearing a white medical coat, standing in front of a tiled wall with blue and white geometric patterns.

    Valerie Arboleda, MD, PhD

    UCLA

  • A smiling woman with blonde hair wearing clear glasses, a red top, and a black cardigan, outdoors with green blurred trees in the background.

    Stephanie Bielas, PhD

    University of Michigan

  • A smiling man with short brown hair and glasses, wearing a navy blazer and a blue shirt, standing outside with modern glass buildings, greenery, and parked cars in the background.

    Eric Conway, PhD

    University College Dublin

  • Rob Illingworth, PhD

    University of Edinburgh

  • A woman with long brown hair, glasses, and pearl earrings smiling at the camera, indoors with a blurred background.

    Natasha N. Ludwig, PhD

    Kennedy Krieger Institute and Johns Hopkins University School of Medicine

  • Cory Rillahan, MD, PhD

    Dana Farber Cancer Institute

  • A woman with blonde hair smiling, wearing a white lab coat, against a blue background.

    Bianca Russell, MD

    UCLA

  • Portrait of a man with glasses, wearing a white shirt, against a gray background.

    Wen-Hann Tan, BMBS

    Boston Children’s Hospital