ASXL Family Conference

June 25-28, 2026
Ann Arbor, Michigan, U.S.A.

Meet your people at the ASXL Family Conference

The ARRE Foundation’s ASXL Family Conference is an educational and social program for families and caregivers of individuals with ASXL-related disorders.

The ASXL Family Conference includes:

  • Educational sessions with medical professionals and parents,

  • Discussion groups

  • Social events, and

  • Critical opportunities to participate in research studies.

View the 2024 ASXL Family Conference program (PDF) for reference.

What you’ll find at the ASXL Family Conference

“The experience was amazing. We were so grateful that we were able to attend.”

— 2022 ASXL Family Conference attendee

A young girl pushing a stroller looks at the camera. She has a bandage on her arm from a research blood draw.
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